TEF/EA

           The MarathonBy Kerry Sheeran Tef/ea



In THE MARATHON by Kerry Sheeran TEF/EA is a surprise diagnosis for the Sheeran's newborn daughter, Emma.  TEF/EA stands for Tracheo-Esophageal Fistula/Esophageal Atresia.  


Babies born with EA/TEF are unable to swallow and may also have trouble breathing.  Many times doctors are unable to detect this condition on ultrasound during pregnancy.  It can be a shocking reality for parents whose children are born with this condition.  Yet there is hope if these babies are treated properly!

Definition
Esophageal Atresia (EA) is a congenital anomaly in which the esophagus, which connects the mouth to the stomach, is shortened and closed off (dead ended) at some point along its length. This anomaly almost always occurs together with Tracheoesophageal Fstula (TEF), a condition in which the esophagus is improperly attached to the trachea, the "windpipe" that carries air into the lungs. Doctors believe these anomalies occur around the fourth week of pregnancy when the digestive tract is forming. There is no known cause.

Esophageal Atresia alone or with Tracheoesophageal Fistula (EA/TEF) occurs in approximately one in 4,000 live births.


In THE MARATHON, Tom and Kerry Sheeran are forced to face the unexpected journey of a daughter born with EA/TEF (among other complications).  From medical to spiritual and emotional, the Sheerans face the challenge of their lives as they navigate the twists and turns of life with their daughter, Emma.  Author Kerry Sheeran courageously reveals the innermost thoughts and fears of parents struggling with experiences far beyond their control.  TEF/EA can be a difficult diagnosis for families, but with proper care and the right surgical team -there is hope.  Most importantly, THE MARATHON connects deeply with other parents - reminding them that they are not alone.  Every time THE MARATHON is purchased, a donation is made to Boston Children's Hospital - so that other families can benefit from the same top-notch care that Emma received.

THE MARATHON IS A NON-FICTION NOVEL THAT TACKLES EXTREMES IN LONG-DISTANCE RUNNING, MARRIAGE, PARENTING AND FAITH.  WHEN THE SHEERANS' PREMATURE BABY IS BORN WITH SEVERE COMPLICATIONS - INCLUDING TEF/EA - THE ENTIRE FAMILY SPENDS MORE THAN 4 LONG MONTHS IN THE NICU AT BOSTON CHILDREN'S HOSPITAL.  AS THEIR DAUGHTER CLINGS TO LIFE, THE SHEERANS MUST FACE THEIR WORST NIGHTMARES HEAD ON.  FROM PATIENT ADVOCACY, TO QUESTIONING THEIR FAITH IN GOD, TO LEARNING TO LISTEN AND TRUST THEIR OWN INTUITION - THEIR JOURNEY AS PARENTS OF A CRITICALLY ILL CHILD IS PAVED WITH INSPIRATION AND HOPE - AND GUIDED BY A MOTHER'S INNER VOICE.  NOT YOUR AVERAGE BOOK ABOUT THE BOSTON MARATHON, THE MARATHON​ EXPOSES THE HEART AND SOUL BEHIND ONE FAMILY'S DESPERATE ATTEMPT TO MAKE IT TO BOSTON BEFORE IT'S TOO LATE.


TEF/EA = tracheo-esophageal fistula/esophageal atresia.


For more information on TEF/EA, please visit the following websites:







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